Bernadette (fourth seating) (USA, 1hr 12min)

Directed by: Josh Taub

Written by: Jeff Ertz, Josh Taub


Bernadette Scarduzio

Bernadette was born with the biggest disease no one has ever heard of… until now. Through Bernadette’s eyes, you will learn the story of millions of Charcot Marie Tooth (CMT) victims. CMT is the number one hereditary neuropathy in the world. It is a nerve and muscle disorder, which leads the body to deteriorate over time. Sometimes the progression is slow. Sometimes it is rapid. In some cases, it is fatal. There is no cure. It is passed on from parent to child and, too often, it becomes an embarrassing family secret. Unfortunately, It goes undiagnosed and misdiagnosed often – yet it is believed to be even more prevalent than Multiple Sclerosis (MS). With this piece, we are uncovering the truths, obstacles and frustrations faced by the worldwide CMT community. 

This is the first and only full-length film (documentary or otherwise) on this subject. In this piece, you will see a beautiful female partnership – a woman literally being carried on the back of her love. You will witness untimely death and spiritual rebirth... However, what truly makes this film great is simply Bernadette herself. She is one of a kind. She will make you laugh. She will make you shed a tear. But please – don’t take my word for it. Watch as she rises from living in obscurity to becoming, in the words of her late father, the “face of CMT”.